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"This book is a "must have" for anyone touched by a devastating illness directly or through a loved one. Any health professional not deeply moved by the contents should find another line of work." — Claire Fagin, PhD, RN, Dean Emerita, U of Penn School of Nursing |
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APPENDIX A: Starting to Learn about Your Disease
Appendix A serves as a guide for sifting through medical resources and how to find health related information. Phone and internet resources are available along with suggestions for health search engines. Advice is also offered on how to evaluate the quality of the resource, understand medical language and learn about health risk and statistics.
Sample Resources:
The National Institutes of Health’s (NIH) MedlinePlus has information on health topics, medicines, medical terminology and other health related resources. It is a good place to start learning about an illness.
Health Hotlines is a service of the National Library of Medicine offering phone numbers of organizations that offer information for specific diseases.
Healthline is an online search engine that focuses on health topics. Compared to a Google search, it will narrow the search results.
MedlinePlus has a website on how to evaluate health information and determine what information is reliable.
Consumer Reports Health has a site on how to understand risk and basic statistics related to health.
This information was last updated June 2010 and will be updated every six months. A more complete list of information and resources are available in the book Aftershock and on the Prepared Patient Forum.
UPDATED JUNE 2010
Updated URLS:
National Cancer Institute (p. 200)
NEW URL: http://www.cancer.gov/aboutnci/cis